Ibu Nuria, Jongaya leprosy settlement, Makassar, Sulawesi, Indonesia. Ibu Nuria was born in Sumbawa, Nusa Tenggara Timor, in 1933. She lived through WWII and was in Class 3 when the Japanese invaded. She contracted leprosy in 1962 and after losing her foot, she moved to Jongaya in Makassar. She now lives in a shelter for older people at the settlement. Ibu Nuria volunteers for Permata and helps out at the weekly self-help group.
Ibu Sani at the Jongaya settlement, Makassar, Sulawesi, Indonesia. Ibu Sani 70 years has been in Jongaya for over 30 years. She is originally from Bone in Sulawesi where she lived with her family, but when she was 40 years old she discovered she was infected with leprosy and moved to Jongaya. She lost her leg 20 years ago as a result of the disease. She now lives with Ibu Mida and Ibu Nuria at a shelter for older people. Her family from Bone still come and visit her at the shelter.
Ibu Sani (l) and Ibu Mida (r) at the Jongaya leprosy settlement, Makassar, Sulawesi, Indonesia. Ibu Sani (left), 70, has been in Jongaya for over 30 years. She is originally from Bone in Sulawesi where she lived with her family, but when she was 40 years old she discovered she was infected with leprosy and moved to Jongaya. She lost her leg 20 years ago as a result of the disease. She now lives with Ibu Mida and Ibu Nuria at a shelter for older people. Her family from Bone still come and visit her at the shelter. Ibu Mida (right), 50, is originally from Gowa and has been at the Jongaya settlement for ‘A long time’.
Bapak Arsyad at the Jongaya leprosy settlment, Makassar, Sulawesi, Indonesia. Bapak Arsyad, 60, works as a parking attendant on Jalan Sulawesi, Makassar. He is originally from Takalar and has been at the Jongaya leprosy settlement for 30 years. He lives in a shelter for older people along with Bapak Baharuddin.
Bapak Baharuddin at the Jongaya leprosy settlement, Makassar, Sulawesi, Indonesia. Bapak Baharuddin, 60, is originally from Sinjai, Sulawesi. He has spent 30 years in the Jongaya leprosy settlement and lives in a shelter for older people with Bapak Arsyad.
Bapak Abustan with a class of children studying the Quran at the Jongaya leprosy settlement, Makassar, Sulawesi, Indonesia. Bapak Abustan, 54, is an Imam who teaches the children of Jongaya the Quran. He is originally from Wajo, Sulawesi, but moved to the settlement 19 years ago. He first discovered he had leprosy in 1975 and was treated for the disease two years later at a local health clinic. However, he suspects he had leprosy before this but his family were too scared and ashamed to seek treatment for him. He met his wife in Jongaya 15 years ago and now has 3 children, all girls. His wife and children are all free from leprosy.
Ibu Hamriani inside her small kiosk at the Jongaya leprosy settlement, Makassar, Sulawesi, Indonesia. Ibu Hamriani, 39, moved to the Jongaya leprosy settlement 13 years ago. She discovered she had leprosy much earlier but left the infection untreated until too late and now has problems with her toes and fingers. She is married to Bapak Agus, 43, and they have one daughter together, Nurlina, 11, who was born in the house where she now runs a small kiosk selling general goods.
Bapak Lahakim working on Jalan Sulawesi, Makassar, Sulawesi, Indonesia. Bapak Lahakim, 52, is originally from Baru, Sulawesi, but moved to Jongaya in 1968 at the age of 10. He has worked as a parking attendant on Jalan Sulawesi, Makassar, since 1990.
Bapak Mustari Lotong with his wife, Ibu Kagau, daughter and grandchildren, Jongaya leprosy settlement, Makassar, Sulawesi, Indonesia. Bapak Mustari Lotong, around 70 years old, is a Rukun Warga in Jongaya leprosy settlement – he works for and represents the community. He found out he had leprosy around the age of 10 and moved to the settlement shortly after. His wife, Ibu Kagau, 57, discovered she had leprosy when she was 9 years old and came to Jongaya a year later. Both are originally from Sulawesi. They met at Jongaya and married in 1970 after Bapak Mustari’s first wife died. Bapak has 7 children and 5 grandchildren from his marriage to Ibu Kagau, and another 7 children from his first marriage. None of his children or grandchildren have leprosy.
Ibu Bunga outside her kiosk at the Jongaya leprosy settlement, Makassar, Sulawesi, Indonesia. Ibu Bunga, 33, discovered she had leprosy when she was 9 and moved to the Jongaya leprosy settlement within a year. She is originally from Makassar. She lives with her husband and grandmother and now runs a small kiosk from her home. Ibu Bunga started the kiosk using money borrowed from Permata as part of a credit scheme set up to support small businesses in the settlement.
Bapak Alimuddin at his recycling business outside Jongaya leprosy settlment, Makassar, Sulawesi, Indonesia. Bapak Alimuddin, 47, is a Bugis, originally from Bone, Sulawesi. He found out that he was infected with leprosy at the age of 12 and moved to Jongaya leprosy settlement in 1980. He is married with four children – none of whom have leprosy. He used to work as a parking attendant in Makassar but with recent increases in taxes, could no longer support his family and so set up his own recycling business using seed money from Permata. The business has been running for just two week.
Bapak Nurdin with his wife Ibu Fatma, adotped daughter Ratma and granddaughter Ningsi at the Jongaya leprosy settlement, Makassar, Sulawesi, Indonesia. Bapak Nurdin, 52, discovered he had leprosy at the age of 12 and moved to Jongaya leprosy settlement in 1969. He met his wife – who also has leprosy – at the settlement after she moved there in 1980. They have 4 children and several grandchildren, including Ratma who they adopted after her parents died. Bapak Nurdin supports his family by working as a carpenter. As a Bugis from Makassar, he started work as a boat builder, but started his own business making furniture in 1970. He now makes wooden puzzles which he exports to Holland.
Bapak Sibali with his becak sepeda at the Jongaya leprosy settlement, Makassar, Sulawesi, Indonesia. Bapak Sibali, 49, is originally from Takalar, Sulawesi. He found out he had leprosy in 1972 but stayed with his family until 1978, when he moved to Jongaya. He met his wife, who also has leprosy, at the settlement. They have one child who is 5 years old. Since 1999 he has worked as a tukang becak sepeda, pedalling customers all over Makassar.
Bapak Sandrey with his becak motor in the Jongaya leprosy settlment, Makassar, Sulawesi, Indonesia. Bapak Sandrey was born in 1963 and has lived in the Jongaya leprosy settlement for 30 years. He discovered he had leprosy when he was 7 but stayed with his family in Gowa until he was old enough to move to the settlement. Bapak Sandrey married and had a son in 2003, but his wife died recently. Since 1987 he has worked as a tukang becak motor driver in Makassar.
Ibu Aban Daeng with her husband, Bapak Emba Daeng, outside their vegetable shop at the Jongaya leprosy settlement, Makassar, Sulawesi, Indonesia. Ibu Aban Daeng, 63, is originally from Gowa, Sulawesi. Her husband, Bapak Emba Daeng, is from Bone, Sulawesi. Both were infected with leprosy at an early age. They met in Jongaya and married in 1967, 7 years after Ibu Aban moved to the settlement. For the last 10 years she has run a vegetable kiosk in Jongaya and recently bought a cart using money loaned from Permata. Her husband now sells vegetables from the cart around the settlement.
Ibu Roseliana (l) at the recycling business owned by her parents just outside the Jongaya leprosy settlement, Makassar, Sulawesi, Indonesia. Ibu Roseliana, 43, was born in Jongaya. She does not have leprosy, nor do her 3 children and 2 grandchildren, but her parents, Sehu Daeng Pali and Fatimah, both have the disease. Sehu Daeng Pali moved to Jongaya in the ’60’s looking for medical treatment and shortly after met and married his wife in the settlement. They set up a recycling business just outside Jongaya in 1982 where Ibu Roseliana now works. The business now employs people who have been infected with leprosy and those that are free from the disease.
Bapak Mursalim at his home in the Jongaya leprosy settlement, Makassar, Sulawesi, Indonesia. Bapak Mursalim, 41, discovered he had leprosy when he was still in elementary school and has lived in Jongaya leprosy settlement since 1997. He met his wife Ibu Intan, 43, at the Daya leprosy hospital whilst they were both receiving treatment for the disease and they married in 1998. Bapak Mursalim works as an ojek motorbike taxi driver, but also runs a small computer and photocopy business from his home. He volunteers with Permata and runs the organisation’s facebook page and website.
Haji Rahmatiah at her home in the Jongaya leprosy settlement, Makassar, Sulawesi, Indonesia. Haji Rahmatiah, 62, has lived in Jongaya for over 20 years. She was 7 when she discovered she had leprosy but stayed in Pare Pare, Sulawesi, until 1974 when she moved to Makassar. She met her husband, Ilyas, 62, at the Daya leprosy hospital in the city whilst they were both receiving treatment. They have no children but her extended family live with her in the same house. Ilyas is blind and so Haji Rahmatiah supports her family by working as a tailor and by making bags and handicrafts. She also used to run a saving and loan scheme used by members of a self-help group in Jongaya.
Buyung in Jongaya leprosy settlement, Makassar, Sulawesi, Indonesia. Buyung, 29, is single and has lived in Jongaya with his family since he was 3. His parents moved to the settlement from Gowa, Sulawesi, after his father discovered he had leprosy. Buyung himself found out he was infected with the disease when he was 10 but received prompt medical treatment and has no after effects from the infection. He now runs a small motorbike repair business in Jongaya and also volunteers for Permata.
Ibu Buhariah preparing food for sale at the Jongaya leprosy settlement, Makassar, Sulawesi, Indonesia. Ibu Buhariah, 39, is originally from Panglep, Sulawesi. She discovered she was infected with leprosy at the age of 7 and received treatment at home and at the Daya leprosy hospital before moving to Jongaya when she was 16. She married in the settlement in 1998 but has no children. She runs a small business selling prepared food such as fish, tempe and vegetable dishes. Up until a year ago, Ibu Buhariah would sell from the side of the road outside her house, but she has now bought a mobile kiosk using a loan from Permata.
Bapak Agus at his kiosk outside the Jongaya leprosy settlement, Makassar, Sulawesi, Indonesia. Bapak Agus was born in 1968. He first found out that he was infected with leprosy when he was 18 years old but received no treatment for two years. He now has problems with his hands and had his foot amputated several years ago. He met his current wife, Ibu Hamriani, at the Daya leprosy hospital and they married in 1999. He has two children – Samsida, 21, from a previous marriage, and Nurlina, 11, from his marriage with Ibu Hamriani. None of his children have leprosy. Bapak Agus runs a small kiosk selling cigarettes, coffee and phone credit outside of Jongaya, and also helps teenagers from the settlement to find work away from the settlement.